Unless you have multiple sclerosis, you will not understand the struggle of living with MS. And we don’t want you too! Even people with multiple sclerosis may not understand what another warrior is feeling and we don’t want them too either. What everyone with multiple sclerosis wants is to not have it. Yet, it is a part of our lives. So we push through, we find joy in the big and little blessings, celebrate every month we go without a relapse and live a life as “normal” as possible. We look to our family and friends for support when times may not be going well and we hope that you all will have our backs.
Multiple Sclerosis Fact #57
People living with multiple sclerosis doesn’t expect you to understand. We expect you to listen and respect our limitations.
This fact is extremely important. As I said earlier, we don’t want you to understand what it is like living with MS. It sucks and there is no way around it. What we need is a friend to come sit with us when we are having a bad day, a spouse who does a couple extra things around the house when our legs are weak, or a listening ear when we need to vent about all this disease has taken away from us. What we don’t need is the comments about what another person with MS can do, the “Why are you always tired?”, or anything else that makes us feel worse about a situation we can’t help. How rude is it of someone not living in my body telling me what it can do? Very fucking rude.
If you are guilty of any of the above crimes, just don’t do it again. It is pretty hurtful and not at all helpful. I just gave a few suggestions on what someone with MS needs. I think the best course of action is to ask your particular MS warrior what they need to feel supported. They may not need anything at this time. Or they have been in need and didn’t know how to ask for help. I know for a while, I didn’t ask for anything because I didn’t want to be a burden. My friends would get so mad at me. Now, I will ask, a little 😆.
Hope you are enjoying my multiple sclerosis facts so far. If you know of anyone who can benefit from this post or any other posts, please share this content with them. Stay well and whole. Much Love 🧡 💚